Privacy policy
The short answer
There is one thing this site asks you for, and it is an email address to open the guides and the printable packs. That is the only information that reaches us.
Everything else is untouched. There is no analytics, no advertising, no tracking, no third-party scripts, and no account to create. Every tool runs entirely in your browser and transmits nothing at all.
The numbers, up front
- What we ask for
- An email address to open the guides and packs. Name, phone, state and situation are optional and you can leave them blank 1
- What we do with it
- Send you the material you asked for, and tell you when the guidance behind it changes. We do not sell it, rent it or share it 1
- Analytics
- None. There is no analytics script on any page of this site, and no third-party script of any kind 1
- Tools
- Every tool runs in your browser. Nothing you type into a tool is transmitted, and the build refuses to publish a tool page that could transmit 1
- Saving
- A few tools offer to save your work in your own browser on your own device. That never leaves the device and you can delete it with one click 1
- What is always open
- Condition pages, event pages, state pages, the glossary and every tool. No form stands in front of anything urgent 1
What we ask for, and why
To open a guide or a printable pack, we ask for an email address. Your name, phone number, state and a short note about where you are in this are optional, and the guide opens whether or not you fill them in.
What it is used for. Sending you the guide and the printable version. Telling you when the guidance behind it changes, which on this subject it does: professional guidance is revised, statutes are amended, and figures are restated. A page you read once is worth less than a page you hear about again when it is updated.
What it is not used for. We do not sell it. We do not rent it. We do not share it with any law firm, any provider or any other organisation. There is no referral arrangement behind this site, and adding one would change what the site is.
What is stored. What you typed, the page you were on when you filled the form in, the site that sent you here if there was one, and the date. Nothing else.
Unsubscribing. Every email carries an unsubscribe link, and it works immediately. You can also ask us to delete your record entirely through the corrections page, and we will.
What never sits behind a form. Every condition page, every event page, every state page, the glossary and all eighteen tools. If you are in hospital tonight and need to know what a Sarnat stage is or how to ask for the monitoring strips, none of that asks you for anything.
What the tools do with what you type
Nothing leaves your device.
The records request builder builds the letters on your computer. The letters are never sent anywhere.
The delivery timeline builder, the milestone tracker, the therapy tracker and the IEP prep tool work the same way.
The state lookups use a small data file that is already on your device once the page loads. Choosing a state does not send a request anywhere.
Nothing you type into a tool is transmitted, logged or stored on any server. The tools are static files running on your device. The only endpoint on this site is the one behind the guide form, and no tool can reach it: the build fails if a tool page so much as loads the script that talks to it.
Saving, and how to delete it
Four tools offer to save your work: the delivery timeline, the therapy tracker, the IEP prep tool and, where you choose it, anything else marked as saving.
If you press Save, the tool writes a copy into your own browser's storage, on that device only.
It never leaves the device. Not to us, not to anyone.
Nobody else can read it, unless they use that browser on that device.
You can delete it with the Delete button on the tool, or by clearing your browser data.
It can disappear on its own, if you use private browsing, clear your browser, or switch device. If something matters, print it.
Nothing saves unless you press the button.
How to check all of this yourself
You do not have to take our word for it.
Turn off your internet connection. Every tool on this site still works, because everything runs on your device.
Open your browser's network tab and use a tool. Nothing is sent while you type. Then fill in a guide form and you will see exactly one request, to this site's own address, carrying only what you typed.
Look at the page source. There is no analytics script, no tag manager and no third-party script of any kind.
The site ships a content security policy that permits connections to this site and nowhere else. Even if a mistake were made in the code, the browser would block a request to anywhere but here.
The build refuses to publish a tool that could send anything. Every release is checked automatically for every way a browser can transmit data, and a tool page that loads the one permitted script fails the build.
What the hosting provider sees
This site is hosted on Cloudflare Pages, and like any web host it processes the technical information needed to serve a page: your IP address and your browser type, in ordinary server logs.
That is standard for any website you visit and it is not something this site collects, uses, or has access to for any purpose of its own.
We do not set cookies. We do not run advertising or tracking scripts. There is nothing on this site that follows you anywhere.
Links to other sites
Pages here link to government agencies, professional bodies and national organizations, because that is where the underlying material is published.
Once you follow one of those links you are on someone else's site, under their privacy policy. This site has no control over what they do and does not receive anything back from them.
Outbound links carry no tracking parameters.
Children
This site is written for parents and other adults. The form is not directed at children and we do not knowingly collect information from anyone under 13. If you believe a child has submitted the form, tell us through the corrections page and we will delete the record.
Changes to this policy
If this policy ever changes, the change will be described here and the last-reviewed date at the bottom of this page will be updated.
If what we collect ever changes, that will be stated at the top of this page in plain words, not buried in a paragraph.
Questions parents ask
Do you use cookies?
This site does not set cookies. A few tools use your browser's local storage, and only when you press Save. That is different from a cookie: it stays on your device, it is not sent with any request, and you can delete it from the tool.
Can anyone see what I typed into a tool?
No. Nothing typed into a tool is transmitted. If you saved it, it is in your browser on that device, so someone using that device could open the tool and load it. Use the Delete button on a shared computer.
Do I have to give my email to read about my child’s diagnosis?
No. Every condition page, event page and state page is open, along with the glossary and all eighteen tools. The email is asked for on the guides and the printable packs, which are the longer how-to documents we can also send you and keep updated.
Will you pass my details to a law firm?
No. There is no referral relationship behind this site, no directory, and no arrangement with any firm or provider. Your details are used to send you what you asked for and to tell you when it changes.
How do I get my record deleted?
Ask through the corrections page and we will delete it. Every email we send also carries an unsubscribe link that works immediately.
Is there any advertising?
No. No advertising, no affiliate links, no sponsorship and no referral arrangements with anyone. See about this site.
Why are the tools treated differently from the form?
Because of what goes into them. A delivery timeline is an account of the worst hours of someone's life. A records letter has a child's name and date of birth in it. A milestone checklist is a parent's private worry written down. That material belongs to you, and the safest way to keep it that way is for it never to leave your device. An email address on a form is a different kind of thing, and you are choosing to give it.
Where these facts come from
- U.S. Government Publishing Office, Electronic Code of Federal Regulations. 45 CFR 164.524, Access of individuals to protected health information. 2025. www.ecfr.gov/current/title-45/subtitle-A/subchapter-C/part-1. Link checked September 3, 2026.